Tuesday I started my new medicine. It is a nasal spray that I take four times a day, and must be refrigerated. This medicine will build up my immune system to the toxins that inflame my body. It will also restore the rest of my brain function. There are two side effects my doctor is more concerned about than others. The only one that has actually occurred in people on the medicine is anxiety. The other is pancreatitis, nobody on the medicine has been hospitalized for this (or anything else). I will be getting blood tests done every 30 days for at least 3 months to check that my pancreas is healthy. I have to be on this medication for six months. I am also continuing my diet, sugar-free, grain-free, caffeine-free, peanut-free, high protein, etc..
I cannot be exposed to anything that will make the slightest bit ill from mould, because I am building up my immune system. This means I cannot go anywhere that has not been tested. I stayed at our house from Easter till two weeks ago. My room (the third floor) tested clean. However, we got the tests back for the rest of our house and it was not clean. We stayed at the condo last week, as a stay-cation. After that though I went back to staying at my aunt’s. I’ll be here for at least a month (probably longer). We are getting some other places tested (eg. condo).
In June and July, I have also gotten to MUSC to be evaluated by their pediatric doctors specifically: cardiology, pulmonary and sleep. My heart is good. Pulmonary said I have some shortness of breath, that the doctor believes comes from unconscious stress. She also said my nasal pathways were shaped abnormally. The sleep lab found that I have mild apnea. It would not even be considered apnea, except I am a child.
Feel free to reach out to me for anything! I appreciate the busy-work, while I am learning to be patient. Also, I got a job a couple of weeks ago. It is at miniature golf course, so I’m breathing outside air the whole time.
Thanks for reading!